My son visited his opthamologist in June (yes, it takes me awhile to post). He is was a few weeks shy of 4 years old (this is 2.8 years post-surgery) was dilated and his vision was thoroughly examined, and despite his quite droopy lid, his vision is perfect. The doctor informed us, assuming his vision remains stable, we could opt for surgery for aesthetic/social reasons only. If you recall, our son had frontalis sling surgery with a silicone rod at 14 mos. old. There are two approaches for the next surgery. The first option is to open the brow and attempt to tighten the existing silicone rod. The pro of this surgery is that it is minimally invasive. The con is that once the Dr. opens the brow, he may find that the rod is embedded in such a way that he is unable to tighten it. If he is able to tighten it, there is a possibility that there may be no visible improvement post-surgery. If the surgery is a success, there is not telling how long the results will last (i.e. lid may droop again sooner than later). The second option is to remove fascia from our son's leg, and replace the existing rod with his own fascia again using the frontalis sling method. The pro of this surgery is that there should be measured improvement to the lid post-surgery, and the results should be lasting. The cons are that the surgery is invasive as there are two surgical sites (leg & brow) and brow surgery is quite involved. With either surgery, there is no promise on how successful the lid lift will be, and how long the lift will remain.
My husband and I think we will move forward with surgery this winter so that by fall 2013, when our son starts kindergarten, he will have a better aesthetic and not need surgery for some or all of his grammar school years. We have not decided which surgical approach yet. I will keep you posted on our next steps.
At age 4, my son is aware that his eye is slightly different from others, but still doesn't seem bothered by it. My son, myself, and my husband occasionally get questions from other kids (sometimes adults) like..."what's wrong with his eye?" or "does his eye hurt?". I often get strangers commenting "someone looks tired!". But, other than that, life goes on as usual. My son plays sports, swims, runs, jumps with no interference from his lid at all.
Let me know if you have any questions/comments.
Thank you for creating this blog.
ReplyDeleteMy Son Tayson is 10 months old. He has Congenital ptosis in both eyes (more sever in the left than right) at 6 months old he had levator resection surgery done to both eyes at a children's hospital (That recovery was torture.... keeping him from touching and rubbing his eyes at 6 months) This Friday we will have his consultation for the Frontalis sling surgery because the levator resection surgery did NOTHING for his left eye. In fact it made the "look" of his eye much worse. We are 4 months out & the L eye still looks very swollen and sore. We have seen the pediatric ophthalmologist many times and his sight has only decreased a very small amount since 4 months old & hardly at all in the right eye. Every person who looks at him, says "ooo did he get a bug bite? Ooo did he bonk his eye? ooo what happened to his eye? and on on. Even Family members who see him often don't look at him without asking about his eye, or when his next appt/surgery is! It is very infuriating sometimes. I know people mean well, but I only wish people could enjoy my sweet son without being concerned about his eyes!
Thanks for letting me vent :) It felt good to write it down. I'll let you know how his next surgery goes.
Thank you again for creating this blog. It is nice to see you son growing up so handsome :)
How are things with Tayson? Did you get a surgery with a better result? I hope so. Take care.
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